What is neuro musculoskeletal disorder?

Autism Spectrum Disorder / Auspergers?

  • My son is to see a Neuro Psychologist in June. His Neurologist decided that his diagnosis of ADHD does not quite fit, as he has other things going on. He has the "classic" symptoms of ADHD, but also has some other things going on. He has vocal and motor tics now, has some sensory issues, and is a very smart child. (I'm not just saying this because he is my son) He is in 2nd grade and does math and reading at a 4th grade level. My question is this- what would a diagnosis of Autism Spectrum Disorder or Auspergers help us with? Is there a treatment for these disorders? Do you have a child, or know one with this issue? If so, do they do ok as they get older, in school, life, etc.?

  • Answer:

    My son who is six years old has been dealing with mental health issues all his life. He was different as a baby. He did not like to be held which I knew was very different as most babies can't be held enough. He was always easily overstimulated by light, noise, smells, all his foods had and have to be bland, certain clothing always bothered him... He had major sensory issues since infancy. He rocked side to side from the time he was two. He used to bang his head when he was two and three years old, but grew out of it. He still had major behavioral issues and always looked confused. He never understood other people's feelings. He was diagnosed ADHD and Bipolar at the age of three. At four years old we made the very hard decision to put him on meds. In his first year of school this year in kindergarten they diagnosed him with Sensory Processing Disorder. We changed psychiatrists to a wonderful doc at a teaching hospital a couple months ago. At my son's first visit with him he said he is clearly PDD (Pervasive Development Disorder which is part of the Autism Spectrum). During a recent psychiatric hospitalization they confirmed that my son has PDD-NOS. They were first thinking he had Asperger's Disorder, but because of his level of confusion they are thinking he is a little more severe than that, but still on the higher functioning end of the spectrum. I talked with the doc at the hospital and asked him how my son could go six years without a diagnosis and he told me that it is not uncommon for this to happen. He told me that because my son talked on time (he never did learn how to converse appropriately and has a certain monotone to his voice but in a loud pitch) and makes a little eye contact (He did this late though) that is why they missed his diagnosis. He said anyone with a trained eye would have seen his other signs though. He said many docs don't know what to look for in high functioning autism and that many cases get misdiagnosed because of this. The doc in the hospital told me that my son will always be a little manic because of his autism. Back when the school told me my son had sensory processing disorder I bought him a weighted blanket. He loves this. It helps calm him and helps him sleep better at night. As I read about Autism weight therapy has been shown to help. Sensory Integration therapy is important with this diagnosis. What can help you? Try the weight therapy. If your son does not have an IEP request testing in all areas. Children with Autism are eligable for services like PT, OT, Speech, Social Skills Training at school and more depending on the individuals symptoms. It is also important to get him into counseling if he is not already. You should also look into a neuropsych evaluation with somebody who is knowledgable about Autism. Genetics testing might be a good idea too. You should Google Autism and your state to find out what other services are available. I live in MA and there are many organizations here to help children with Autism. I have found help with educational advocacy, social skills groups, etc. There also is a special part of the Department of Developmental Disabilities which used to be called DMR in my state that has a whole Autism Division... although they only accept 80 clients at a time. They offer financial assistance for things like parent training, behavioral training, applied behavioral analysis, social skills training, respite, and other things individualized to each client. What I have found helps my son most is a picture schedule I made. Consistancy is very important with autistic children. They need to know when whatever is going to happen. We have a morning routine and a night routine that we do the same each day. I put these on our picture schedule attached to his door. Also on his door is one half of velcro strips and the headings morning activities and afternoon activities. Then I made little cards from Google Images and pictures that I had in the computer of everything we might do. It helped to brainstorm first thinking of all the places we might go, appointments, outings, things he likes to do, his chores, anything else he might do. I put them into five categories and made little envelopes out of paper for them. They are categorized as Daily Activities, Outings and appointments, no school day activities, chores, and active activities. I found most picture I needed on Google Images or for his appointments on the agencies websites. Then I went to WalMart and bought some laminating paper and velcro. I copied and pasted the pictures into my word processer and then underneath I labeled it with what ever activity it was. One word works best for him because he is so young. Then I printed them, cut them, laminated them, and put a little piece of velcro on the back. I put them in the appropriate envelopes I made. Oh and on the envelopes I put two holes with a paper puncher and put string through so we can hang t

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Here is the thing, diagnoses overlap. Being smart (gifted) is in itself considered a learning difference so its not suprising that so many kids with a dx are also with a high IQ. How old is he? The tics are anxiety based and from this brief description sound like tourettes. The neuro psych is a great idea providing you aren't paying an extraordinary amount for it. My son had an IEE (independend evaluation exam) done by an independent psychologist at age 7.5 yrs after the school psychoeducational report was very unfavorable. Expect alot of diagnoses. It will help get him more support in school, a 504 accommodation (accommodations that are not academic in nature) like untimed tests, preferential seating, advanced warning on schedule changes etc. my son was dx PDD.NOS (atypical autism or autistic features) at age 2, at 7.5 ADD.NOS was added, dysgraphia, POAD (an auditory processing disorder), 2 language disorders, mixed expressive/receptive language delay, a phonological disorder There is treatment for certain symptoms, autistic spectrum disorders vary greatly in the degree of impairment and symptoms Do those with these issues do ok in life? Loaded question. Yes many do, 20 percent are completely independent, 60 percent need some degree of help. If they are guided correctly yes, but decisions are very important and set backs can have lasting effects, many only survive in the right environment and don't adapt well to say a super large college etc. Those that are gifted do better than those that aren't. From my family most have done very well: my father, dx asperger's, in 1950 dx with hyperlexia and PDD, later dx asperger's. Dx gifted in elementary school-psychologist, director of one of the largest group homes specializing in autism. married/4 kids self-dx autistic in 1975, dx dyslexic and gifted in 1979, dx asperger's in 1988, psych nurse, married 3 kids brother-dx PDD.NOS in 1984. Single, self sufficient, IT. No desire for marriage or kids, age 34 husband's 1st cousin-break down in college, never recovered, died of alcoholism at age 42 husband's 1st cousin-hermit, single age 40, never married, can't hold a job husband's cousins both siblings, both pushed, both gifted, speculated autism though family doesn't acknowledge issues Bill Gates and Albert Einstein have done very well: http://www.youtube.com/watch?v=f15JexiQt4U http://www.youtube.com/watch?v=wRRNeAilrnM&feature=related reading suggestions: 10 things every child with autism wished you knew-Ellen Notbohm Why does chris do that? Tony Attwood The oasis guide to asperger's syndrome- Barb Kirby The out of sync child-carol kranowicz we are fans of the weighted blanket, have 2 from dreamcatcher, a 7lb one (8yr old, but I love it), and 4 lb one, and a picture schedule too

beetlemilk

There was an Autistic boy all though my Elementary school through High. It was a very bad case, and he had to have a "Helper" go with him everywhere. He was very friendly, and he and I used to be friends. But sometimes he got angry and he would hit people or threaten his teacher. It all depends on what level of Autisim your son has. If it's slight, he won't need a "Helper".

The treatment of an Autism Spectrum Disorder Child/Asperers isnt the same as a child with ADHD. It's not like there's a magic pill that will make it go away but there are different things that occupational therapists etc can do for your child to help From physical exercises to mental to gain the child's attention.. etc With the proper help and treatment plan your child will get much better and more adjusted. Besides the fact that having the right diagnosis would help him tremendously-in school and in life. Ok here are a couple of links to help you understand a bit more of what Autism is-some of the links are from Canada since Im Canadian http://www.autismsocietycanada.ca/understanding_autism/what_are_asds/index_e.html http://www.autism-spectrum-disorder.com/ http://www.autismresearch.ca/ Good Luck!!

~Ariana~

I am a sufferer of ADS and aspergers together, and have suffered from it for years now, since i started 4th grade (im 18 now). my biggest hint is to not try to tell him that he has a disability and that it makes him abnormal, just accept these quirks of nature as part of his personality (you may find he will have very little interest in girls, fashion and things most older kids/ teens find interesting, and this will set him apart socially) dont press him or chase him about making friends, he should be able to do this OK when he is younger, but may become less able as he ages.. I speak from experience when i say that such happened to me, i was confined in a special needs class that learned on a level far lower than myself (putting a smart kid into a dumb kid class) and it was draeadful. insist that you son receive minimal support if you want to avoid a lot of depression issues. in some ways you are very lucky to have a son who has been diagnoised with ASD, it has very few adverse effects and the thought process it inspires is quite helpful. avoid drugs and specialist consultancies wherever possible, this will just compound any sence of abnormailty your child will feel as he gets older. one of the main problems i have developed over time is chronic insomnia, from 14 to date. we treated this with a drug called catapres (aka clonodine), but you have to keep a watch on blood pressure while using it. i no longer take it so that i can be eligeble for military service. i know alot of people will be advising you to take him to see all sorts of doctors, but first hand experience is telling you not to. if he develops violent natures though i would see a doctor, since the types of AS can vary. If you ever need more help with him , or have any questions,your welcome to e-mail me (you can do so from my profile).

Ringking

Take the short-cut, go to Yahoo Groups on autism. Also go to websites that talk about ridding autism. My children no longer have it. www.liafoundation.org www.autismresearchinstitute.com www.generationrescue.org

Heidi N

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