What are the effects of long-term interactive music therapy on young adults with severe autism?

Autism - am i wrong in stopping this therapy?

  • i have a son who is 3yrs 8 mnths. by now i have no doubt that he is suffereing from autism. ( i went thro a whole period of denial and looking for other possible causes for his problem), his problem actually is that he cannot understand what is being said..language receptive delay. he is echolalic. repets almost everything said to him but he cannot retain words and their meaning. many times when he wants to say something you can see him thinking hard for the correct word. his current vocabulary..for words whose meaning he knows is arnd 45-50. small words like ball, bird cat, aeroplane...stuff liek that. he has been on therapy on and off for almpost 1 yr. but here lies my main problem. for him ohter than language delay/ communication problem and the resulting frustration, he has no other problem. he is very normal as far as emotions, understanding, affection ect go. he had abv avg intelligance. ok another prob he is has is hyperactivity. he cannot sit still for long. attention span is also short. but again for things that he cannot really understand. for things thathe likes he sits still and does it for a long time. now the therapy that he recieves goes something like this. there the[rapist has many toyson the table.. first stage he was given the toy only when he sat. that was fine. he learnt that soon. next stage was he has to keep his hands folded till the count of 5 while sitting, only then he would get the toy. if he would move even a little the whole counting would be repeted till hedoes it right and the meanwhile if he cries let him cry. this took weeks to acheive but still we got there. i was fine till that point of time. but as time passsed her demands from him grew, and reinforcement was kept the same. i started feeling that she want him to turn into robot. wheni say sit then sit, wait then wait. anynormal kid would also not do that. and she wasimmune to his crying and protesting. now this therapy might be a solution for kids higher up in the autism scale but my son is not like that. the things that she wanted him to do... half of that he would do readily..if she started off with a hug and kiss and loving voice and gesture to help him understand what she wants. i know that. im is mother. sometimes her attitude seemed to me like she thinks he is being naughty. and his needs will not be met till he follows her rules. like if she is sowing him a book and says 'point to car'.. and if along with point he says 'car' then the book will be taken away as point shud only mean point not say, when she says 'what is this' he shud keep his hands folded and say 'car'. she refused to listen to me. it seemed wrong. just like it would be if a doctor gave the same med to any one who is sick despite hving diff sysmptoms. after a few weeks of this he got frustrated... so much so thathe started banging his head and throwing tantrums which he never did before. the therapist blamed me saying that i wasnt doing enough follow thro at home.. if i did then he wudnt act out. i stopped the therapy. it has been 2 months now. his behaviour i wouldnt say is better but it is certainly not worse which i feeared it would be if i had cont with that. but as time passes ..guilt , fear. and apprehension has taken over me. after all im not a professional. what do i know. maybe that was the correct method. she was the best therapist in my area. now i dont know what to do. shud i start going back to her. after reading her methodsi wud luv any inputs from anyone who has faced such a prob or has a child going thro therapy. thanks in adv.

  • Answer:

    This does indeed sound like ABA. But from what you describe, are you sure your son has Autism? It doesn't seem so to me! He has specific language problems and hyperactivity issues from what you say, so this would place him more on the ADHD spectrum than anything else. Let me explain why the approach your therapist is taking is wrong. This is a behavioural therapy, - it focuses on behaviour, not the cause of the problem, which is in the brain. Why is it wrong? Because it may have and effect upon behaviour, - the way your son reacts to a specific stimulus, but it can have no effect upon his experience of that stimulus! Let me draw you and example. - Consider a child who has over-sensitive hearing and who screams in agony every time he hears a high pitched noise. Your therapist will train him not to react by screaming by using a system of rewards and aversives, (punishments) to reinforce his behaviour. She may well succeed in extinguishing the screaming behaviour and replacing it with another response. The question you have to ask yourself is this. - Is this child's hearing still over-sensitive and is he still in agony every time he hears a high pitched noise? The answer of course is yes, - all the therapist has done is to 'condition' him to react in a different way, - she hasn't solved his problem at all.

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that method is inappropriate...you need to find a new therapist... are you using ABA..this sounds like bad ABA....ABA can work when done right...this sounds like military school...that is not normal behavior for anyone--its appropriate for a child to to quietly--but the hands can be on the lap or the table...folded hands is old Catholic School.. what led you to believe she is the best.. look for someone who specifically uses Verbal Behavior its one thing to only point when the direction 'point; is being taught.. but its normal for a child to point and say the name of a picture..so that shouldn't be a problem...he's combining 2 skills---which is what you want... the 1st part of good ABA is teaching the 'robotic' skill. but than that skill needs to be used incidentally in natural settings...and combined with other skills until it is mastered. actually, the higher up, the less the focus on teaching individual skills in a robotic manner to begin with. part of the therapy should be to encourage social connection too--and being a drill sergeant doesn't do that.

jmitw

It's wouldn't be much of a solution for "kids higher up in the autism scale" either. But they might be able to be more expressive about what is being done to them. "his problem actually is that he cannot understand what is being said.." No, not completely. It seems little effort is being made to establish his preferred modes of communication and employ and enhance them. Communication is the goal, I take it, rather than just producing a person who externally fits the image of "normal"... Sign language might be a better intermediate for now, or PECS, or even typing words on a computer... We vary enormously at what we do well and poorly. I would like to do some therapy on this "therapist." Perhaps a Milgram training experiment, but for real. Electric shocks every time she gets something wrong. And I get to define what's right and wrong. Her opinion won't count. Or would that be unreasonable as she doesn't have autism? (It's not you I'm angry at...)

Pedestal 42

Listen, I've got three sons, all on the autistic spectrum, all older than your son, all high functioning and none of them have ever had a therapist like that. Therapy does seem like its not getting results until it clicks and that can be a year or more, but she's garbage I don't give a hoot about her rep. she sucks. Find another therapist. And I've got 1 kid like yours, a lot of sensory integration issues, some groping with the apraxia, processing issues and receptive language delay is more the issue even though there's a significant expressive delay. I agree with the others that it sounds like bad ABA which is what my area offers. I've read, and heard of great ABA with fabulous results, just haven't seen it because it doesn't exist in my area that I am aware of and I'm into all of it for the past 10 yrs. Your first and best bet is an OT that specializes in sensory integration. fyi it is very hard to find a decent SLP that gets it. I agree it sounds like bad ABA which is all that is available in my area as well. I'm sure its fantastic if done right. We do the PECS, my 5 and 4 yr old are talking complete sentences now, @ 3.5 they had less expressive vocab than your son and were about where your son is @ 4yrs 0 months

beetlemilk

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