What is hereditary sensory autonomic neuropothy?

I am a 19 year old male who had brain cancer, and has neuropothy and ataxia.?

  • I had an emergency brain surgery to remove a brain tumor and to relieve pressure in my head. It was cancerous and I had over a year of chemo and radiation and have a shunt in my head. The tumor causes me to have physical handicaps and terrible balance. I also have bad neuropothy so I can't play my guitar anymore. I am very depressed and considered suicide. The only thing that seems to help are opiate type medicines but my question is if I would qualify for that or are they just used right after a surgery. I need some sort of answer and beg for help.

  • Answer:

    Sam, I will give you one more piece of insight since you gave more criteria regarding your problems. I understand neuropathy from the chemo. I have it too. They didn't warn me about it I just woke up with the terrible numbness, burning, and pins and needles (in my feet and a bit in my fingers) one day 14 years ago and it has never changed since. At the time I felf very decieved by my doctors and wondered why they didn't warn me about this possibility. It did make me very depressed. I had to change my career over it. Yes Sam, you do qualify to recieve the opiate type medications. If your doctor has been making it difficult for you or told you otherwise then I would recommend finding a new doctor. Remember this is about your life and about your living a decent quality life as free from pain as possible. Since you are only 19 you are not used to how things really work but I will tell you that the relationship you have with your doctor is of extreme importance, the biggest thing is that you need to try what they offer and always be truthful and forthcomming with them. They will give you the same respect that you show them. You may need to find a new doctor--I have found that for a Gp type doctor a "DO" (doctor of osteopathy) seems to have a very keen understanding of pain management and seem more comfortable in working with opiate based meds to find a solution. The next step now is to call tomorrow and make an appointment and speak with your doctor (or find a referral for a new one) about how you will be getting treated and managing your pain and neuropathy symptoms. There are allot of new stem cell based treatments right around the corner for people with nerve damage so the future looks fairly bright for neuopathy sufferers. Beating cancer is definately a tradeoff--there is no free lunch in the world of cancer as you have found out. Sam, I wish you all the best and I hope you do well in getting this pain under control. Best Wishes

Sam at Yahoo! Answers Visit the source

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Well, I can't really help you with anything but you considering suicide. No matter how bad things are, don't commit suicide. I struggled with depression for a long time, and always thought of suicide and wanting death, but I didn't commit suicide. Not a way to die. As for the depression, talk to someone about it. Just don't kill yourself man, it's not worth it.

Ryan

It's possible you had low dose chemo for over a year, but you did not have radiation anywhere near a year. You're on tramadol which is an opiate like pain medication. After all your questions, it almost sounds like you're just trying to get drugs.. The tumor is gone, according to your other questions. Chemo side effect is neuropathy. Don't know about the ataxia unless your tumor was in part of the brain that controls balance and coordination. They aren't gonna give you what you had right after surgery, which was morphine. They gave me dilaudid to bring home after my surgery, not for long term use.

april

IMMUNITY* BOOSTERS: How to recover ‘fast’ from the impact of radiotherapy followed by chemotherapy/illness? Here is a way out. Preparation for Surgery and Post Surgical recovery, Post-Blood Transfusions & Prevention of illnesses by keeping Ur immunity levels intact while getting treatment for HIV/AIDS, any dreaded and incurable disease condition. 1. Good liquid Diet, green leaf juices + honey, like aloe vera juice, noni juice, wheat grass powder, fresh fruit [seasonal fruit only] juices sprouted seeds like green gram, horse gram, ground nuts, boiled- after soaking in water for 15 hours-soya beans,etc., raw coconut, raw dates, helped many a no. of Health conscious people all over the globe. Acupressure techniques can also ensure faster recovery. Acupressure techniques--- Utility—Blocked energy + toxins shall be moved from all Ur internal organs to purge in the normal drainage system, i.e., urine, feces, sweat, cough, menses[ladies], vomiting and all the organs shall function up to optimal levels. With Ur thumb, press Ur/his/her palms and soles, wrists and ankles on both sides. Suppose pain is felt while pressing a particular point in the palm/sole, u have to press the surrounding area—just like u r pumping out air from that painful point. The blocked energy in any internal organ, be it lungs, heart, stomach, kidneys, pancreas, liver, etc., shall be released along with toxins if any. As a last point u must press middle part of each palm/sole; so that toxins, if any, shall be excreted/purged through urine without affecting the kidneys. It should be done in an empty stomach or 2 hours after meals. With this, all the endocrine glands and their hormonal secretions shall be regulated. All internal organs shall function up to optimal levels. Ur entire immune system gets invigorated to produce antibodies. Remote control Acupressure points given by the God. For Treatment, hard-pressure is to be applied on & around these points with Ur thumb and middle finger. Palms/soles: http://www.facebook.com/media/set/?set=a.2304961665160.2103840.1282822997&type=1&l=0a6bb63dd0 Dorsal side of Palms & soles: http://www.facebook.com/media/set/?set=a.2306802071169.2103895.1282822997&type=1&l=38eadce9df No salt, no baking soda, no cooked food, No chocolates, No Pizzas, No burgers ----to boost-up immunity power to produce antibodies. Say no to Deep freeze and deep fried products from KFC and McDonald, Diet sodas with aspertime and colas made in India, etc. Hemoglobin is measured in grams per deciliter of blood. The normal levels are: 1.Women: 12.1 to 15.1 gm/dl 2.Men: 13.8 to 17.2 gm/dl 3.Children: 11 to 16 g/dl 4.Pregnant women: 11 to 12 g/dl Treatment for increasing hemoglobin/ANAEMIA* Take [72] Black raisins [black dried grapes] as may be required daily. Soak them in a half a cup of water over night. Eat these black raisins as mentioned below and drink the water. Morning After noon Evening 1st Day 1 1 1 2nd Day 2 2 2 3rd Day 3 3 3 4th Day 4 4 4 5th Day 4 4 4 6th Day 4 4 4 7th Day 3 3 3 8th Day 2 2 2 9th Day 1 1 1 2. Anemia, calcarea phos 3X two grains t.d.s. If this fails, take 10grams each of calcarea phos 3x , Ferrum phos 12 X, Kali phos 3X, Kali Sulph 3X, Mag Phos 3X, Natrum Mur 3X and Natrum Phos 3X; failing which add Natrum Sulph 3X and Silicea 12 X. This is wonderful. This cures even pernicious anemia. To increase red corpuscles in blood give Natrum Mur 3X.. . Dosage 2 grains t.d.s. . Dosage 2 grains t.d.s. .. All these biochemic salts are safe and with side benefits. Don’t swallow medicine. The medicine to be dissolved on/under the tongue. Don’t take any thing 10 minutes before and 10 minutes after medication. You can take water. 3. Aloe Vera juice – 30 ml. + 1 tsp of honey—t.d.s. 4. Wheat grass powder – 1 tsp of powder + 2 drops of honey + 1 cup of hot water b.d.s. 5. Noni Juice-A French fruit. 5 ml., tds., in the I week; 10 ml tds., in the II week and 15 ml. t.d.s, from III week onwards. Add double quantity of water every time. PS. If satisfied/benefited with, inform others to browse ‘Yahoo Answers’ on any health issue. • Source: 'Health In Ur Hands' by Dr.Devendra Vora,D.Sc.,M.D.,F.R.C.P., an octogenarian & the pioneer in Acupressure in India.

Dr.dhananjaya Bhupathi

I believe the best thing you can do is give your body a lot of good nutrients through juicing fresh organic fruits and vegetables. Exercise can also help to relieve the symptoms of depression also. You should probably check out the reference links that I am sending you. Foods high in antioxidants can help dotoxify the body and may help with your balance and playing your guitar. As for preventing cancer in the future, here are some things that I have learned through my internet research. Cancer thrives in an acidic, toxic, low oxygen environment, and feeds on sugar. I believe that if a person can take away the environment that cancer needs to thrive, the body will be able to use its own defenses to kill off the cancer cells. Most, if not all of us have at least a few cancer cells in our bodies, but our immune systems can kill these cells if it is functioning properly. The first thing I would do to prevent cancer is try to eat plenty of organic fruits and vegetables, and try to avoid eating foods that have added sugar. Organic foods do not have all those toxic chemicals sprayed on them and are grown in healthier soil, giving the food more nutrients. The body needs nutrients so the immune system can function properly. Juicing the organic fruits and vegetables can help the body get more nutrients from the food, thus boosting the immune system. Cutting out or drastically reducing processed and refined foods, meat, alcohol, fast foods, artificial sweeteners, and sugar (sugar contained in fruit is ok to eat) should be done to prevent cancer, because a lot of these contain toxins, make the body acidic, or provide food to the cancer cells in the form of sugar which they need to thrive. Exercise helps oxygenate the cells within the body as well as detoxify the body. It is a good idea to get at least 30 minutes of aerobic exercise everyday if possible. Getting 8 hours of quality sleep every night is good for proper immune function and healing. Reduce the amount of stress in your life significantly. Stress can suppress the function of the immune system. Deep breathing and meditation can help. Eating foods that are height in antioxidants may prevent cancer because they can help detoxify the body. Vitamin C is an antioxidant that the body must get through the diet because it cannot manufacture it. If you are a smoker, you should think about quiting as soon as possible. There are many toxins contained in the smoke that may be carcinogenic. Take care and may God bless you.

Tom

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