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I don't wanna be sick :(

  • Can you recommend books and other resources to help alleviate the self-stigma of mental illness? *Aerated Wall of Snow inside* Hi AskMefi! I apologize in advance if I say things that would offend anyone coping with mental illness or a loved one. It is not wholly intentional, it is kind of part of the pain of what I am dealing with now. If you'd like to skip all the text below, I bolded the Q's with numbers. Thanks for your reading and your mental exertion. I asked a question http://ask.metafilter.com/236904/Manic-episode-in-Major-Depression about hypomania with major depression. Well, after a few months, a dropped class, a destabilizing whirlwind romance and a lost research internship, I was diagnosed with Bipolar II Disorder. I am currently taking mood stabilizers, and in an Intensive Outpatient Psychotherapy Day treatment program to work on my life skills (attendance and staying on top of things/staying engaged while in the throes of the horrible depression; substance abuse; emotion regulation is also a big one for me), and I am really, you know, "proud of myself" for seeking help. I've been seeing an individual therapist for a year now, as well. So yay, I have sought help and am getting it. Everything is fine and dandy, right? No, it is not. And I know the expectation is not that it will be fine and dandy, I've learned enough to know that that's not realistic. A lot of it is stuff I need to address in therapy. But there is one thing I am really struggling with and I wonder if you guys can help me out, from your own experience perhaps if you can relate to this. The biggest thing I am dealing with now is very paradoxical considering I want to become a Clinical Psychologist and I honestly feel great empathy for people who have Mood Disorders. It is just very difficult to apply to myself. My biggest struggle, now that I have accepted that I have/have been diagnosed by a doctor with a condition (I don't even like saying mental illness), and have accepted that I have pathologically misused substances (am attending AA though I still don’t say I am an alcoholic, have been sober 60 days, will continue and begin stepwork), is an immense feeling of self-stigma. I know that there is stigma out there, and even if people say it has gotten better I really don't think that is the case, even within the psychology field, even though everyone in my IOP says, "yeah so many people have depression and anxiety, and take meds". I KNOW that the stigma exists though. And bipolar seems to be...more “crazy”....I don't know, the way people talk about it. Also, I believe I have some borderline traits, while I have not been officially diagnosed; I used to have Rule-Out personality disorder; BPD is even worse when it comes to stigma. Also, I have known for a long time that I am “crazy” and now it has just been outed and I am feeling very uncomfortable and sad and isolated and like I will be alone for the rest of my life. I have pretty much accepted that I will not have a husband and I am mentally preparing myself for the reality that I will become a mother on my own, when I am 36 or so. Even if other people with bipolar have successfully found partners, my self stigma makes me feel like for me, personally, it will not be possible. On top of that, for my schooling I read about the neuroscience and symptomology of bipolar disorder and it's all "impairment" here and "deficit" there and I don't know...I am really struggling with the stigma and just, the reality of having this "illness" and really internalizing it. I am having trouble even viewing myself as a capable or competent individual, even though I can write papers and get A’s on tests and whatnot. Growing up as a relatively poor Asian American child, I felt very marginalized among all the "normal" kids (even though, I know, everyone has their issues); this was magnified by my mother’s nearly decade-long battle with cancer and death at my early adolescence, and I believe that initially my way of compensating and finding my role in the society around me was to be a very high achiever. Now I feel that even that aspect of my identity is compromised by having a mental illness...like I have an unsound mind ... and yes, it has been very difficult for me to keep a job and that causes me great shame. I know it's RIDICULOUS; I feel like I have an open mind about mental illness except when it applies to myself. When I bring up these concerns in therapy, my therapist/the group's response is very patient, and they challenge my beliefs. But it just doesn't enter my skin or my brain. Their challenges aren't working. They just remind me how hard I am on myself, I'm too hard on myself and that's a major thing I need to change, blah blah blah. And they gently remind me that my perfectionism is not realistic. It just is not sinking in. I am hard on myself for good reasons, because there is a standard to social behavior and you must match those standards; there are desirable traits and by having a major mental illness, I have a HUGE red flag just waving over my head. I am an emotionally imbalanced person and now I have a label to confirm it... I mean it's even central to the notion of mental disorder - there is no disorder without an order against which to measure it. I don't know, the feeling of having been measured as mentally, like,... disordered or deficient is extremely devastating to me. Before I sought help I was just on an antidepressant that didn't work and I could just tell myself that I had depression maybe or that just maybe I was a tortured individual but now it feels like I have a severe mental/emotional handicap and I am really, really struggling with that. I am beginning to view myself as more deficient than I actually am, and my therapist has called me out on it; I say that I am bad at intimacy with human beings in general, but she says I am generalizing from failed romantic relationships (with men who have felt that I am emotionally too much to handle... and I am!!); I say that I am incapable at life and she reminds me that a 9 to 5 at something I am not passionate about was impossible for me, and that I have areas at which I excel and areas in which I need to mature, and she tries to remind me to stop splitting. Anyway, a lot of that was rant that I kind of needed to share, so thanks for reading it if you did; but I do have questions: (1) if some of you out there have felt the same way, are there any resources besides therapy, like maybe books or movies or essays, that have helped you normalize your self-stigma? I feel like maybe some kind of media would be helpful to me. (2) even if you just understand and have felt the same way, and can share what caused a change for you, if it has changed. Or even if you understand and feel the same way right now. (3) If you can think of any skills I can use to address this, and yes I will bring it up in therapy, but you guys often have such wonderful insights, if you can shed any here I would be grateful. TL;DR: I am feeling self stigma over my diagnosis of bipolar disorder; I feel that it is justified by society and also by my desire to be socially acceptable and even desirable; it would be nice to hear some validating voices as well as suggestions to any resources, books, movies, essays, etc. that might help with these issues.

  • Answer:

    (with men who have felt that I am emotionally too much to handle... and I am!!) I have known a few bipolar individuals. I have no reason to believe I am bipolar but I seem to be emotionally open in a way that you sometimes see with bipolar people. My reason: I was molested as a child and button-holing total strangers helped me get assistance when nothing else was working. So my experience is that "the truth shall set you free" rather than that "the truth hurts." I am make plenty of mistakes but I rarely act out of malice towards people so I feel I have nothing to hide, in terms of motives. We all make mistakes. None of us is perfect. A lot of people find me emotionally "too much to handle." But not everyone. My sons are both aspie-ish and they tell me things like "you make the best faces." Since they have trouble reading social cues, they appreciate that I signal them loud and clear. I write and I started some comics and I try to use those creative things as an emotional outlet. I did a http://ask.metafilter.com/260942/Personal-Stories-Behind-Creative-Works to help me do that better. I work more these days on finding constructive outlets rather than on judging myself for being the way I am. I always felt I was unlovable and too much because of being molested and raped as a child. I felt stigmatized by that for a long time. But I did get over that and plenty of men find me attractive. Trying to work out the details is a challenge but that seems to be a challenge for most people (need proof? just read through a few relationship Asks...). During my divorce, I found that whatever I think is a "bug," someone, somewhere, will see as a "feature." So, some men deal fine with my emotionalism. In fact, some men crave how emotional I am. For me, the trick is looking for a man who craves it from me but is, himself, calm. Men who are also high drama are just a catastrophe waiting to happen. I gravitate towards people who are kind of aspie-ish or otherwise calm, cool, and collected for some reason. I knew a man for a time who had been questioned under torture while in prison for his political activism. It was a good relationship. He had enormous self discipline and was good for me and did not find me "too much." He found me to be a feast. You might try reading books about giftedness, like "Different Minds" (I have not read it but have seen it recommended on various lists) or Temple Grandin's writings such as "Emergence" and "Thinking in Pictures." You might also read books about other disorders which are not classified as "insanity", like dyslexia, such as "The gift of dyslexia." I spent a lot of years on parenting lists for folks who had gifted kids. Past a certain IQ, issues like ADHD, ASD, OCD and so on are so common that some folks refer to them as "comorbidities" of high IQ. You might try joining some email lists for gifted parents and listen in. "Genius" is fundamentally about the mind simply working differently than "average." It comes with good points and bad points. I have two sons who are both twice exceptional -- bright but with other issues -- and I was a good student but I have a serious medical condition and some other problems. Staying mentally and emotionally grounded has long been a challenge for me. Learning more about how the mind works in a more neutral way -- that some minds are simply different from others, whether we call that differentness "crazy" or not -- has been helpful for me and my sons. I also would recommend you read biographies of people you can identify with some manner. I sometimes say that "If Joan of Arc were alive today, she would be in a psych ward getting her meds adjusted to try to make the voices go away instead of putting a man on the throne and playing handmaiden to the birth of modern France." For various reasons, I have wrestled at times with wondering whether or not I am simply crazy. There is an Einstein quote I am fond of: A question that sometimes drives me hazy: am I or are the others crazy? Well, I am out of time. I feel that is a bit scattered but I hope it helps you.

bengalibelle at Ask.Metafilter.Com Visit the source

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I brought this up earlier in another thread, but it hit me very hard when I was sitting in a darkened theater and Tony Stark had a panic attack. You aren't deficient. You're different. Very few people are completely typical; you're a little further away from the mean than most. There are some ways that will hurt you. There are other ways it will help. Most things that could happen physically, you only have the down side to compensate for, so mental health is a different kettle of fish. I think it's a bit like being Deaf. You feel things differently than a lot of people do. You will need to learn to regulate that in ways that fit at least loosely within the bounds of socially acceptable, but you don't necessarily need to pass for completely ordinary. Stephen Fry is bipolar, as is Hugh Laurie. Chris Evans has talked about his anxiety problems. Merlin Mann, the 43 Folders productivity guy, has ADD and I suspect he probably wouldn't have gotten into the productivity stuff if he didn't. The thing about these people is that they have gotten into places in the world where being a little weird is pretty okay. There is a place in the world for us, too. It's okay to be a little crazy if you can manage it well enough to make your life work. It'll take awhile to figure all that out, but you'll get there.

Sequence

I can only give you my advice and opinion as a mentally interesting person who has bipolar disorder. I was diagnosed with manic depression at age 19 -- I'm 47 now, you do the math. I've never hid it from anyone -- ever. Why? Because the stigma is social construct that is only allowed as long as people let it continue. I didn't ask to be born with a miswired brain and I'll be damned if I'm gonna feel guilty about it. I have four children. They're great adults. They survived their childhoods having a mentally interesting mother. Now, I did go through two husbands (while unmedicated I'll add) and quite a few broken hearts (also while unmedicated) before finding my current husband, but he is my match and he's here to stay. I also have a Master's degree - which I recently obtained. My college was more than willing to work with my mental interestingness. Again, I hid nothing from any of my instructors. They all knew of my bipolar as well as all of my other physical disabilities. I never once felt stigmatized by any of them. Though one suggested I might be better off not taking medications (but he was a hippy throwback). I just kinda ignored his non-medical advice. Other than that, nothing. They worked with me whenever I felt either emotionally or physically overwhelmed. Honestly? In my experience, being mentally interesting isn't nearly as horrible as it was back when I was 19. But even then I didn't care who knew. It's been my experience that so long as I act and feel as though I have nothing to be ashamed of... so long as I feel I am not "sick in the head" then people tend not to treat me as a leper. They treat me as the person that I am. And I am one heck of a person. Just ask me. :) If you had any other problem - arthritis, fibromyalgia, etc... would you hide your head in shame? Hell no! This is not something you should be ashamed of IMHO. It's not something you brought onto yourself, and if society makes you feel ashamed of your interesting, miswired brain, then shame on society. That's the way I feel anyway. And it's worked for me in dealing with bipolar and its stigma.

patheral

I have Tourette Syndrome, and I wrote a bit about the shame and stigma of it http://metatalk.metafilter.com/23124/Mental-illnesses-as-adjectives-Perhaps-not#1131252 (it should be noted I was having a really bummer time dealing with it when I wrote that comment). I'd like to address the concern that you'll never be good enough for a partner. I've joked to partners that they're getting a discount, like a floor model or a dented can; I'm so cute and such a good boo, but I'm broken. They always look at me like I'm talking complete nonsense. People notice my tics. I get stared at by strangers and I have to explain myself to people at parties. But, say, after a year of living with someone, they don't even notice my tics anymore. It's just background noise. No one will love you, and understand you, like the person you're supposed to be with. I think you have this idea that potential partners are going to be even harder on you, and have these standards for you: WHY AM I SETTLING FOR THIS CRAPPY DENTED CAN? That's not how relationships work, honeypie. I can get through a first date without screaming the c-word a bunch of times; you can get through a first date without having a meltdown. By the time you're together long enough for them to see your symptoms emerge, they're going to be in love with you. And after a few years or so, your illness will just be background noise, and no one will understand it or have more patience for it than your partner.

Juliet Banana

there is a standard to social behavior and you must match those standards; there are desirable traits I think the standard for social behavior is a much lower bar than what you're setting for yourself, and different people find different traits desirable. Would it be possible to hang with an edgier, weirder crowd who are all pushing the boundaries of normalcy in some way, or are magnificently far beyond abnormal? The John Hughes movies with Molly Ringwald might be comforting. The goal isn't to be popular; the goal is to find your niche. Maybe you're not a summer blockbuster; you're a cult classic, and that's OK.

Bentobox Humperdinck

I'm going to mention this as an option, because it's what I ultimately did: reject the diagnosis. I was diagnosed with Bipolar Disorder at 21. I was given the usual story and the usual drugs, and went along with it. At around 32 I realized the usual story and the self-conceptions that are encouraged by it and the drugs that are administered with it were, at least in my case, the apparatus of a radically distorting fiction which had discouraged me from grasping or grappling with the actual problems -- cognitive, moral and spiritual -- while pushing me into otherwise pointless patterns of behavior. Abandoning the social institution of being a mental health care patient is unfortunately a tricky business, to say the least, and I did not finesse it. I tried to go too fast, and there were further difficulties. It's a long story and not exemplary. I eventually found a psychiatrist who was able to listen to me. And now, at 46, I am four months away from being drug free. (I'm still taking a trace dose of clozapine -- 12.5mg per diem -- of which I have been very patiently stepping down the dosage for about five years.) My conclusion has been that, in my case, a vast amount of suffering and waste of time would have been avoided had I rejected the diagnosis and rejected the treatment proposed to me when they were first introduced, 26 years ago. After 26 years of dealing with mainstream psychiatry, it's plain to me that it is a profession in almost total ignorance about its purported object -- madness -- and that its methods of classification and care are on the whole more destructive than they are helpful. (Please look at a http://ask.metafilter.com/249909/Tool-kit-for-treating-mental-illness on a somewhat related question -- scroll down -- for a fuller statement and some references.) What I would urge you to do is familiarize yourself with the contrarian literature. Entertain the possibility that the concept of a major mental illness as something neurologically and biochemically characterizable is flawed to the point of being pseudo-scientific. You are absolutely right about there being a real stigma; one that the psychiatric profession more or less, in effect, seeks to enforce. (They are enthusiastic classifiers and assigners of levels of 'functionality'.) One way to get beyond the stigma, at least personally, is to see through the entire enterprise of materialist psychiatry. Otherwise put: to see that, whatever your no doubt very grave problems are, you do not 'have' anything properly called a mental illness. Also I'd advise you do a lot of introspection about what is actually going wrong when your psyche is going wrong. The story you are being encouraged to tell yourself by the professional help -- there is this mood disorder -- is probably introducing unnecessary scripts and meanings and obscuring what has actually been happening. Reading in psychoanalytic and spiritual literature may give important clues. (For me, the book http://www.amazon.com/exec/obidos/ASIN/0465020224/metafilter-20/ref=nosim/, which is a little of both, was extremely useful.) I hope this perspective helps one way or another. I know a lot of mefites accept contemporary materialist psychiatry as being basically valid, and feel that one ought to organize their lives within its confines, but you do not have to.

bertran

Hi. {BIG HUGS} You are not alone. I've recently discovered the work of http://www.alice-miller.com/index_en.php I don't know your background, but I found her writing extremely helpful in gaining insight into how my own "condition" works, why I think/do what I do, a possible twist to the origin of my "helping" tendencies - and found a lot of relief in the understanding I got from her work. You may also find the site http://reappropriate.co/ of some use. All the best!

Wyeldfire

Watch "David & Monica" on Netflix. It is a nuanced portrait of a young couple who both have Down's syndrome. They contribute whatever they are capable and no one faults them for that. They are not deficient; they are who they are, with various skills and challenges. You may have pictured a different road for yourself but this is your road and you are doing what you are capable of. Think evolution: if there truly was no point to mental illness, it would have evolved itself out somehow. It must have some role or function in society. Finally a word of hope: I am, I suppose, what you would call "a handful", as is my sibling, and we've both found people who adore us just as we are. Everyone has their shit, no one is perfect, & it sounds like you have a good heart so focus on that.

St. Peepsburg

(2) even if you just understand and have felt the same way, and can share what caused a change for you, if it has changed. Or even if you understand and feel the same way right now. I can relate to a lot of what you're talking about. I don't know what to do about any of it really, but I just wanted to let you know I hear you. One thing that I do and that I think you're doing, too, is to see yourself in black and white terms and to strive for extremes. So either you're perfect or you're broken, either you're perfectly competent at everything or you're perfectly incompetent at everything. If you are like me in that way, if it turns out that you're not going to be "perfect," you'll force yourself to the very extreme of "imperfect." Try not to do that, try not to force yourself to be the worst out of despair that you're not the best. I say that I am bad at intimacy with human beings in general, but she says I am generalizing from failed romantic relationships (with men who have felt that I am emotionally too much to handle... and I am!!) This sounds pretty similar to me -- I'm also prone to going from zero to sixty (and back) when it comes to intimacy, which has frankly not served me (or anybody) well. Something that's been useful to me with that is thinking about it using the framework of the abuse cycle, which can also involve (the abuser) pulling someone in very close, and then pushing them away very hard, over and over. Since I don't want to be abusive or hurtful to people, being conscious about not creating that cycle in my relationships has helped me keep a more even keel with people altogether. by having a major mental illness, I have a HUGE red flag just waving over my head. I am an emotionally imbalanced person and now I have a label to confirm it... I hear you. You're not just this label, though, and neither is anyone else who it applies to. You already felt marginalized as a kid, you didn't only begin feeling alienated after you were given this label. Without a diagnosis, what would really be different except that you'd be at least as alienated as you are now, except that you'd have less support and more confusion? For what it's worth, I also have so much trouble "owning" any diagnoses or labels for myself, and not just in things related to health. I'm just *so* not a joiner, I guess? What gets me over that, at least sometimes, is the desire to show solidarity with and support for people who are dealing with similar things as me or in a similar context and who *do* want to own that label.

rue72

Yes, I've read about Synesthesia...it's really interesting! I watched some youtube video and a guy tastes words, including names. So he didn't know how to tell his best friend's wife that her name tasted awful to him, like shit. Nothing personal. Just the word, haha. Through my schoolwork, I've learned a lot about the weird ways that the mind works, from taking classes on psychology and neuroscience. And when I actively learn about it, it does give me an appreciation for the range of human mental/psychological/neurological experience. I guess I just...wanted to be closer to the mean?? But I am beginning to radically accept. I also shamefully observe, as has been demonstrated above, that I have become overly self-absorbed during this entire process of monitoring, introspecting, etc. so I am signing up for NY cares to volunteer and just get out of my head into the world, and care for others which usually gives me feelings of connection and proper "worthiness". Thanks for your well wishes and suggestions. And virago, I have seen that title when I went to check out the aisles in the "psychiatry: bipolar disorder" section, which is the first thing I did after my diagnosis haha. I will check it out as well. I have been considering whether I want to read it or not, bc at first I wanted a scientific rather than experiential/autobiographical text, but maybe the connection with another would be more helpful. Thank you for the rec

bengalibelle

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