I'm in a lot of pain and want to know why.
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About two years ago I started having various health issues, and since then, it's all gone downhill. It's also become clear that I need to switch doctors, so I'm asking you, Metafilter, to help me prepare for the new doctor. What's wrong with me? You are obviously not my doctor! Me: female, mid-twenties, childless. Around two years ago, I started to have IBS-type symptoms (bloating, cramps, irregular BMs, heartburn, gas, etc) as well as frequent yeast and urinary tract infections. Then I started getting painful, achey joints (hips, knees, shoulders, elbows, hands and feet; all day, but especially after the gym, after sitting in a certain position for a while, and upon waking up) and killer back pain. Even more recently, I've had facial (jaw, eye, and even overly sensitive teeth), painful cramps/"charlie horses" that radiate from my hip, down my leg, and to my foot/toes in my left leg only. And within the last few months, I've started getting pretty extreme vertigo (I think that's the right term for it) when walking down stairs. Also probably not related but noteworthy: 1. I'm klutzy; I frequently walk into doorways, cabinets, tables, etc. I drop things frequently. This goes way beyond normal klutziness, though. I've walked down a straight hallway and hit the wall. I just have terrible balance and coordination. 2. My periods are NIGHTMARES, especially emotionally. I recently took out my NuvaRing and was in tears for NO REASON less than three hours later. This is common for me at PMS time even without birth control. 3. Talking is exhausting. This is a weird one, but I can't see you get out more than a "paragraph" without being winded, especially if I'm doing other things like walking around or cooking (nothing particularly extreme, here). Today I was merely sitting in a chair giving someone instructions and I was almost immediately out of breath! 4. I'm very weak. I ride my bike to work everyday on the same route for about a mile each way, and have been doing so for 5+ years. It's still really tiring and challenging for me. I joined a gym and, although I think my cardiovascular health is fairly good (I can do the elliptical for 45 minutes and "run" about 5 miles), the next day I am WRECKED. Like, I can barely get out of bed due to muscle and joint pains. I'm not doing anything other than the elliptical, and sometimes I do it for as little as 30 minutes. It gets worse if I go back to the gym the next day or the day after, and it gradually gets back to normal (to joint paint and weakness, not so much muscle pain) if I stop going altogether. Problems I know I have or have had for as long as I can remember: 1. Vitamin b12 deficiency (diagnosed) 2. Very low blood pressure/heart rate, which has resulted in fainting on several occasions. I still get dizzy and light-headed, but I've been able to control the fainting for a few years. (diagnosed) 3. Wolff-Parkinson-White syndrome (occasional episodes of rapid heart beat). I've been to a cardiologist as a teenager, but only wore a monitor for a day. My younger sister wore one for a month and they figured out that she has Wolff-Parkinson-White syndrome, which was corrected via catheter ablation. I'm 99% certain I have this, but it's not been diagnosed. (FWIW, this sister is 6 years younger than me, and I was complaining of these symptoms well before she could talk.) 4. I've also had variations in my thyroid, from hypothyroidism (medicated with Synthroid) to hyperthyroidism. I'm switching doctors for a number of reasons. I think she is way, way too busy (she's ALWAYS on vacation and it's impossible to get an appointment with her), and because I also think that she is quick to dismiss some of my issues. She will often shrug something off (like yeast infection symptoms, complaints of joint pains and cramping, facial pain) and say something like "I'm not sure why that would be happening. You've stumped me." It's really quite astonishing. I've stopped taking new issues to her because I'm not sure how seriously she even takes me anymore. And on that note, I suppose my symptoms could be psychosomatic, but I haven't noticed a correlation between my symptoms and the stress in my life. In fact, other than feeling like crap all the time, my life has gotten monumentally better in the last few years as far as personal relationships and my career are concerned. I really have no troubles, and I have tons of wonderful people around me. And I find being in the hospital, getting blood work done, and talking to near-strangers about my issues all pretty humiliating, so I'm not exactly in this for kicks or attention. My goal is go to a new doctor with some ideas. I'm hoping that I don't have anything serious going on and that I can get to the bottom of this and start feeling better. When looking at my stupidly extensive list of woes, does anything stick out to you? Again, I know you aren't my doctor, and I have an appointment to see a doctor to discuss all this with her. But I nee help collecting my thoughts, because googling endless lists of symptoms with no focus or knowledge is pretty useless. My symptoms have begun to make daily things really exhausting, and even getting into work feels monumental. I'm trying to stay positive, but it's hard. Thanks for your help! ouchithurtsdoc [at] gmail [dot] com
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Answer:
Not all primary care physicians are created equal. It sounds to me like your PCP should be an http://en.wikipedia.org/wiki/Internal_medicine, not a family doctor or general practitioner. The former specialize in the diagnosis and treatment of disease, particularly multi-systemic diseases. The latter focus more on overall, routine wellness, maintenance of low-severity chronic conditions, administering annual physicals, etc. Internists are also more likely than family doctors or GPs to have extensive connections with specialists and their own hospital privileges. Each has their place, and if you're basically healthy, a family doctor or GP will be fine. But you're not. So you need to go to a doctor who deals with sick people, i.e. an internist. You should also probably try to go to an internal medicine practice in a big hospital, preferably a university hospital, rather than some county hospital outpatient clinic. You've got some real issues. You want to talk to people with the experience and resources to take those seriously. You're probably going to need a referral to a specialist too. It sounds to me like you might need, at least, a consultation with a gynecologist (lady bits), a gastroenterologist (GI tract), a cardiologist (heart/blood pressure), an immunologist (auto-immune possibilities), and a pulmonologist (lungs). All of which your internist will be able to provide (or eliminate) once he's worked you up.
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Other answers
Most of your symptoms could be signs of inadequate treatment of your thyroid issues, especially the muscle and joint pain and the menstrual difficulties. In addition to whoever you switch to as your regular doctor, you should be seeing an endocrinologist. If the first endocrinologist you see doesn't appear to be getting things under control, try another one in six months. You say you have a B12 deficiency. Is that being treated properly? Are your blood tests for that good now?
artistic verisimilitude
Before you do any kind of gluten elimination, ask your doctor to do a test for celiac disease. It's a simple blood test, but it has to be done before you reduce or eliminate gluten. Celiac disease is tricky to diagnose because it presents in all sorts of ways (and causes all sorts of secondary problems), but also because up until relatively recently doctors were taught that it was incredibly rare and not worth testing for. (It turns out that about 1% of the population has it). Any time you have unresolved "IBS" type symptoms, you should be testing for celiac.
gd779
Seconding gluten intolerance. Something you could try on your own is the http://whole9life.com/2012/01/whole-30-v2012/. It's an elimination-type diet focusing on whole foods. I've had remarkable success with it, especially when it comes to dealing with GI stuff. (I'm female, 30s, with lifelong digestive troubles that have cleared up entirely since adopting this way of eating).
lizifer
Lupus? It could also be a food allergy like gluten intolerance, or fibromyalgia. Some of the symptoms sound like endometriosis or cysts. I would switch doctors, go to appropriate specialists (gynecologist, rheumatologist, etc) and pursue every angle. This is no way to live.
hotelechozulu
I don't have much advice, but just wanted to say that I'm a female, just about the same age as you and have nearly the same exact symptoms you complain about. I've also been told there was 'nothing going on with me' and had my concerns easily dismissed by several different doctors, so if I were you, I'd be prepared to argue back that YES, they do affect your daily life and you need to have something done about it.
Trexsock
I had many of your same symptoms in my early 20's. I was diagnosed with chronic mono, chronic fatigue syndrome, depression (I was very sad at how sick I was), and a sleep disorder. I finally found a doctor that tested me for food allergies. Once I stopped eating certain foods, the chronic pain and much of the fatigue went away. It felt like a miracle. It turns out that I am very sensitive to just about everything. If someone sprays lysol around me, I am sick for days after. I cannot take most medications. I have to be careful what I eat. I cannot wear synthetic fibers or sit on carpet without getting a rash. I have mild asthma on top of it all. It took me 5 years to find that doctor. One of my food sensitivities is yeast. Even now, 15 years later, whenever I am under a lot of stress, drink wine and have bread in the same week, I get a yeast infection. You may want to try cutting yeast out of your diet for a week or two to see if you improve. Your thyroid problem may be the cause of all of your symptoms. Try to find a doctor that specializes with thyroid issues. But keep trying. An answer is out there. Don't give up.
myselfasme
IBS-type symptoms are sometimes accompanied by nutrient http://en.wikipedia.org/wiki/Malabsorption, which depletes all sorts of micronutrients, which causes further random systemic problems. If you already had a B12 deficiency, it could be getting progressively worse as these symptoms go on. IBS-type symptoms may also be accompanied by http://en.wikipedia.org/wiki/Small_bowel_bacterial_overgrowth_syndrome which is associated with widespread inflammation and will make you feel terrible in all sorts of interesting ways. Throw in a wonky thyroid and you have a recipe for extreme misery. Before I got to the bottom of my own issues, I had very little energy, odd heart symptoms, anxiety, and (strangely) bleeding gums. The http://shepherdworks.com.au/disease-information/low-fodmap-diet diet helped me break the cycle and eventually led me to identify fructose malabsorption - which is currently rather underdiagnosed, and I highly recommend this specific elimination diet, as it casts a very wide net. IANAD, and of course this is a shot in the dark blablabla, good luck!
tempythethird
Just because it doesn't seem to have been mentioned in any of the other lists of specialists, rheumatologists specialize in auto-immune diseases and many of them have well-deserved reputations as medical detectives who can really figure these things out (because auto-immune diseases are complicated and they see so many sick people). Joint pain is an obvious thing to see a rheumatologist about, and it sounds like yours fits the auto-immune pattern (worse after being still and first thing in the morning).
hydropsyche
IANAD. Muscle and joint paints, vertigo, instant windedness, weakness = 1. You are not getting enough calories and/or the correct macronutrient ratios, either because you're not eating enough or you're not eating the right things. Are you vegan? Vegetarian? Stop. It's not working for you. OR 2. You have malabsorption because something you're eating is making your intestines unhappy, and therefore you're not getting enough calories. Try eliminating things for a few days while making absolutely sure you're still getting enough calories from protein, carbs, and fat. OR 3. You have mono. These are my guesses, having experienced similar things.
zeek321
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